Free long-term care resources for Illinois families

    Illinois Long-Term Care
    Everything Your Family Needs in One Place.

    Navigating long-term care in Illinois is complicated — Medicaid rules, care costs, and senior services all have their own language, and it's hard to know who to turn to or who you can trust. We've organized everything Illinois families need into one free guide — including connections to vetted providers who can help ease the burden.

    Built around your situation and Illinois's specific programs and rules.

    Always free for familiesNo Hidden FeesSecure and Confidential
    Understanding long-term care in Illinois

    What Illinois families need to know before making care decisions.

    Long-term care in Illinois presents unique complexities — from Chicago's higher metro costs to downstate rural communities with limited provider availability. There are Medicaid waiver programs, supported living facilities, managed care plans, and community-based services spread across 102 counties.

    Illinois stands out with a $17,500 asset limit — nearly nine times the $2,000 limit in most states — and a Medically Needy 'pay-in spenddown' option that's rare nationally. Understanding these Illinois-specific advantages can save families thousands.

    We've organized every Illinois-specific resource, tool, and guide in one place so families can stop searching and start planning. Everything here is free.

    $8,304/mo

    Nursing Home — Semi-Private

    $1,304/mo

    Medicaid Income Limit

    135+

    Senior Service Resources

    Not sure where to start with long-term care in Illinois?

    Takes about 60 seconds • Free • No pressure

    Illinois care costs

    What long-term care actually costs in Illinois.

    Illinois care costs vary dramatically by region — Chicago metro area facilities run 20-40% higher than downstate communities. Statewide, nursing home care averages $8,304/month (13% below the national average), while assisted living averages $6,219/month near the national rate.

    Understanding the full range of care types — from adult day care (the most affordable option at $1,977/month) to private-room nursing homes — helps families plan realistically. Most families use multiple care types as needs change over time.

    Use the calculator below to explore Illinois care costs in detail and project how they'll grow over time with a 3% annual inflation rate.

    Nursing Home — Private

    $9,216/mo

    Nursing Home — Semi-Private

    $8,304/mo

    Assisted Living

    $6,219/mo

    Memory Care

    $7,800/mo

    Estimated (AL × 1.25)

    Home Care

    $6,864/mo

    $36/hr (nat'l avg: $35/hr)

    Adult Day Care

    $1,977/mo

    Source: CareScout 2025 Cost of Care Survey (updated March 2026)

    Calculate Your Illinois Costs

    State-specific data · Inflation projection · Total estimate

    Use the sliders below to adjust years, inflation, and projection period

    1 yr15 yrs
    1%7%
    Now30 yrs

    Not sure how long you'll need care? Get full insights into when you may need care, what kind, and for how long — personalized to your health and finances.

    Start Your Full Care Planning Assessment →

    Your Cost Estimate

    Today's Monthly Cost

    $9,216/mo

    NH Private Room · Illinois

    Monthly Cost Today

    $9,216/mo

    3% inflation · 3 years of care

    Monthly cost today$9,216
    Care begins2026 (now)
    Years of care3 years
    Inflation rate3% annually
    Total estimated cost$341,829
    🏠

    Don't rush to sell the home

    Bridge loans, HELOCs, and reverse mortgages can fund care without selling.

    📈

    Care costs rise 3–5% annually

    Factor long-term inflation into all planning models.

    ⚖️

    Medicaid lookback is 5 years

    Planning must begin well before care is needed to protect assets.

    Source: CareScout 2025 Cost of Care Survey (updated March 2026)

    * AK NH Private Room: A Place For Mom. ADC — DE: Genworth; DC: PayingForSeniorCare; ID: MedicaidLongTermCare.org; SD: Genworth; VT: VT Adult Services Div.; WV: CareCostIndex.com.

    Understanding costs is the first step. Next, let's explore how Illinois Medicaid can help cover them — and what financial planning options are available.

    Illinois care costs are generally below national averages. Nursing home semi-private rooms average $8,304/month (13% below the $9,581 national average), assisted living averages $6,219/month (near the $6,200 national average), and home care averages $6,864/month (3% above the $6,673 national rate). Chicago metro costs run significantly higher than downstate areas. Use the cost calculator above for detailed breakdowns.

    Chicago metro area care costs typically run 20-40% higher than downstate communities due to higher real estate costs, wages, and demand. A nursing home in Cook County may cost $10,000+/month while a comparable facility in southern Illinois may be under $7,000/month. Use the calculator above to see costs specific to your area.

    Adult day care is the most affordable option in Illinois at approximately $1,977/month — significantly less than assisted living ($6,219/month) or nursing home care ($8,304/month). Home care at roughly $6,864/month offers flexibility for families needing part-time support. The calculator above compares all options side by side.

    See your care options and costs based on your situation

    Illinois Medicaid

    Understanding Illinois Medicaid long-term care coverage — and whether your family qualifies.

    Illinois Medicaid (Medical Assistance) is administered by the Department of Healthcare and Family Services, with eligibility determined by the Department of Human Services. Illinois's $17,500 asset limit is one of the highest in the nation — nearly nine times the $2,000 limit in most states.

    Illinois offers a unique 'pay-in spenddown' option, allowing applicants to pay their monthly spenddown amount directly to IDHS rather than accumulating medical bills. The state also counts VA Aid & Attendance as income — unlike most states. The CSRA is capped at $143,172, and the CSMNA (Illinois's term for the Spousal Income Allowance) is set at the federal maximum of $4,066.50/month.

    Use the Medicaid tool below to check eligibility, understand Illinois's specific rules, and explore planning strategies.

    Income Limit — Single

    $1,304 / month*

    Income Limit — Married (one applying)

    $1,304 / month for applicant*

    Asset Limit — Single

    $17,500

    Asset Limit — Married (one applying)

    $17,500 for applicant & $143,172 for non-applicant

    Look-Back Period

    60 months (5 years)

    Estate Recovery

    Yes — Illinois seeks reimbursement after death

    Medicaid programs available in Illinois

    Waiver for Supportive Living Facilities

    The Supportive Living Program (SLP) provides support for elderly or disabled persons in 'supportive living facilities' (similar to assisted living). Services may include personal care assistance, housekeeping, laundry, intermittent nursing care, and memory care for persons with Alzheimer's disease and other dementias.

    HCBS Waiver for the Elderly

    Also called the Persons who are Elderly Waiver, limited support is provided to help seniors remain living at home. Benefits may include adult day care, homemaker assistance, automated medication dispensers, and medical alert services.

    Medicaid Managed Long Term Services and Supports (MLTSS)

    Part of the HealthChoice Illinois Program, MLTSS is a managed care program for dual-eligible persons (Medicaid and Medicare). Benefits may include transportation to medical appointments, home modifications, assistance with daily living activities, adult day care, assisted living / memory care services, and more.

    Illinois Medicare-Medicaid Alignment Initiative (MMAI)

    For dual-eligible individuals, this managed care program streamlines Medicaid and Medicare benefits. HCBS benefits may include physician & dental visits, adult day care, personal care assistance, meal preparation, and housecleaning.

    Money Follows the Person (MFP)

    Illinois is in the process of implementing this federal program. MFP helps institutionalized Medicaid-eligible persons transition back home or into the community.

    Program of All-Inclusive Care for the Elderly (PACE)

    Through PACE, the benefits of Medicare and Medicaid, including long-term care, are available via a single program.

    Long-term care Medicaid guide

    Eligibility · Caregiver pay · How to apply · 2026 data

    Important: Rates vary — contact your state Medicaid office for current figures. This tool provides general guidance, not legal or financial advice.

    Compare Medicaid Programs — Illinois

    How the main LTC programs available in Illinois compare side by side.

    Illinois does not have a general Structured Family Caregiving program. Consumer-directed hourly pay is the primary Medicaid option for family caregivers.
    ProgramPayPay typeTax-free?Spouse OK?Waitlist?
    Consumer-directed HCBS$15–18/hrHourly wageNoUsually noOften
    Structured Family Caregiving (SFC)Not in IllinoisDaily stipendYesUsually noOften
    Personal Care AgreementMarket rate (from assets)Private payNoYesNo
    VA Aid & AttendanceUp to $2,874/moMonthly pensionYesYesNo

    Illinois Medicaid programs

    1

    Community Care Program

    2

    IL HCBS Waiver

    2026 policy warning: The One Big Beautiful Bill Act (signed July 4, 2025) cuts federal Medicaid spending by ~$911 billion over 10 years. HCBS waiver waitlists are expected to grow significantly. Apply as early as possible — do not wait for a crisis.

    Sources: KFF (Jan 2026), medicaidplanningassistance.org (Feb 2026). Programs and rates change — verify with your state Medicaid office.

    Sources

    Educational guidance only — not legal or financial advice. Your state Medicaid office determines actual eligibility.

    Medicaid figures: 2026 federal/state guidelines

    Beyond Medicaid, Illinois has a network of senior services and programs that can help your family. Let's explore what's available in your county.

    Illinois's Medicaid asset limit is $17,500 — nearly nine times the $2,000 limit in most states. This significantly higher threshold means many Illinois seniors who would be ineligible in other states can qualify here. The higher limit applies to all Medicaid programs — Nursing Home, Waivers, and Regular Medicaid. Use the Medicaid tool above to check your eligibility.

    Illinois offers a unique 'pay-in spenddown' option for its Medically Needy pathway. Instead of accumulating medical bills to meet the spenddown amount, applicants can pay the difference between their income and the MNIL ($1,304/month individual, $1,762/month couple) directly to the IL Department of Human Services. This makes the process more predictable and manageable.

    Yes — unlike most states, Illinois counts VA Aid & Attendance benefits as income for Medicaid eligibility purposes. This is an important consideration for veterans and their spouses applying for Illinois Medicaid. The total income, including VA A&A, must be under the applicable limit. Use the Medicaid tool above for detailed eligibility checking.
    Illinois senior services

    Community services and aging programs available to Illinois seniors — most families never find all of them.

    Illinois's 13 Area Agencies on Aging coordinate services across all 102 counties — home-delivered meals, transportation assistance, caregiver respite, benefits counseling, legal aid, and home modifications. The Illinois Department on Aging also operates the Senior HelpLine at 1-800-252-8966.

    The Community Care Program (CCP) provides in-home services for seniors at risk of nursing home placement, including homemaker services, adult day care, and emergency home response systems. Illinois also funds ombudsman programs for nursing home and assisted living residents.

    Use the service finder below to discover which programs serve your Illinois county — or browse the full directory for statewide and local listings.

    Home-Delivered Meals & Nutrition

    Programs like Meals on Wheels and congregate dining at senior centers — available to Illinois seniors through local Area Agencies on Aging.

    Transportation & Mobility

    Non-emergency medical transport, volunteer driver programs, and reduced-fare transit for Illinois seniors who no longer drive.

    Caregiver Support & Respite

    Respite care, support groups, training, and the National Family Caregiver Support Program — helping Illinois caregivers avoid burnout.

    Benefits Counseling & Legal Aid

    Free SHIP (State Health Insurance Assistance Program) Medicare counseling, Medicaid application help, and legal assistance for elder law issues like guardianship and advance directives in Illinois.

    Question 1 of 40% complete
    1Step 1 of 4

    Select your county

    This helps us find your local Area Agency on Aging

    Links verified June 2026 · Always call to confirm current availability

    In addition to government programs, Illinois has a strong network of nonprofit organizations that can help — many offering free services most families never discover.

    The Community Care Program (CCP) provides in-home services for seniors at risk of nursing home placement. Services include homemaker assistance, adult day care, emergency home response systems, and home-delivered meals. CCP serves as a key diversion program helping Illinois seniors remain at home. Contact the Senior HelpLine at 1-800-252-8966 for more information.

    Illinois has 13 Area Agencies on Aging serving all 102 counties. Call the Illinois Senior HelpLine at 1-800-252-8966 to be connected to your local AAA, or use the senior services finder above and enter your county to see available programs including meals, transportation, caregiver support, and benefits counseling.

    Yes — the Illinois Department on Aging operates Adult Protective Services (APS) to investigate reports of abuse, neglect, and exploitation of adults aged 60+. To report suspected abuse, call the APS hotline at 1-866-800-1409. The state also has Long-Term Care Ombudsman programs that advocate for nursing home and assisted living residents.
    Illinois nonprofit resources

    Nonprofit and community organizations helping Illinois families — free help most families never find.

    Illinois has a robust network of nonprofits serving seniors — from the Alzheimer's Association Greater Illinois Chapter to Legal Aid Chicago and community action agencies across the state. Many offer free benefits counseling, caregiver training, and emergency assistance.

    Regional nonprofits provide specialized services including SHIP counseling (free Medicare advice), elder abuse prevention, and respite care coordination. Your zip code determines which organizations serve your area.

    Use the nonprofit finder below to search for organizations that match your family's specific needs.

    Disease-Specific Support

    Nonprofit organizations focused on Alzheimer's, Parkinson's, ALS, cancer, and other conditions that require long-term care. Illinois chapters offer helplines, support groups, respite programs, and education to help families navigate diagnosis and care planning.

    Legal Aid for Seniors

    Free legal assistance with Medicaid applications, advance directives, power of attorney, guardianship, and elder abuse cases through Illinois's legal aid societies.

    Caregiver & Family Support

    Nonprofit organizations providing caregiver training, respite coordination, support groups, and counseling for Illinois families — because caregivers need care too.

    Community Action & Emergency Aid

    Community action agencies and charitable organizations offering emergency financial assistance, utility help, food pantries, and crisis intervention for Illinois seniors.

    Question 1 of 5
    1Step 1 of 5

    Who needs help?

    This helps us personalize your results

    Don't hesitate to contact multiple organizations — many have overlapping services and can refer you to others. Every conversation gets you closer to the help your family needs.

    Illinois has nonprofits including the Alzheimer's Association Greater Illinois Chapter, Legal Aid Chicago, Prairie State Legal Services, and community action agencies. Many offer free services like benefits counseling, caregiver support groups, and emergency assistance. Use the nonprofit finder above to search by your situation.

    Yes — Legal Aid Chicago, Prairie State Legal Services, and Land of Lincoln Legal Aid provide free legal assistance to eligible seniors, including help with Medicaid applications, advance directives, power of attorney, and elder abuse cases. Use the nonprofit finder above to find legal organizations serving your county.

    For immediate help, call 211 (Illinois's information and referral line) or the Senior HelpLine at 1-800-252-8966. For suspected elder abuse, call APS at 1-866-800-1409. The nonprofit finder above can help you locate crisis and emergency services in your area.
    More tools for Illinois families

    Additional resources every Illinois family should know about.

    Medicare, Veterans benefits, caregiver compensation programs, and financial planning tools are available to every Illinois family — and understanding them early can save thousands in long-term care costs.

    Medicare Guide

    • What does Medicare actually cover for long-term care?
    • What happens when Medicare runs out?

    Understand exactly what Medicare covers for long-term care, for how long, and what your Illinois family needs to plan for when coverage ends.

    Veterans Benefits

    • Does my parent qualify for VA long-term care benefits?
    • What is the Aid and Attendance benefit?

    Find every veterans benefit available for long-term care — including programs most Illinois families never know to ask about.

    Caregiver Compensation

    • Can I get paid to care for my own parent in Illinois?
    • How much do caregiver programs pay?

    Find out if you qualify to be paid as a family caregiver in Illinois — and exactly how to apply.

    Financial Planning Tools

    • How do we pay for care without losing everything?
    • What financial strategies protect our assets?

    Explore every financial strategy available to Illinois families — from spend-down planning to long-term care insurance and asset protection.

    Medicare covers short-term skilled nursing care after a qualifying hospital stay — up to 100 days with cost sharing after day 20. Medicare does not cover long-term custodial care — the ongoing personal care most seniors eventually need. Use our Medicare guide to see your complete coverage picture.

    Veterans may qualify for the Aid and Attendance pension — up to $2,874 per month for a veteran with spouse — as well as VA community living centers, home-based primary care, and adult day health care programs. Note: Illinois counts VA Aid & Attendance as income for Medicaid, unlike most states. Use our veterans guide to check your family's eligibility.

    Possibly yes. Illinois's HCBS Waiver programs and the Community Care Program may allow eligible individuals to receive compensation for providing care to a family member. Self-directed care options may be available depending on the specific program. Use our caregiver compensation tool to check what programs exist in Illinois.

    Most families use a combination of personal savings, Medicaid planning, veterans benefits, long-term care insurance, life insurance conversion, and annuities. Illinois's $17,500 asset limit gives families more flexibility than most states. Our financial planning tools help you map every option available.
    Care connections — Illinois Coming soon

    Finding the right people to help your Illinois family.

    When it matters most, nothing replaces someone who truly understands your family. Care Connections will match your Illinois family with vetted local professionals based on your zip code and your specific situation. No cold calls. No pressure. Just the right introduction at the right time.

    Tell us what your family needs and we'll notify you the moment Care Connections is available in your Illinois county.

    Helps us match you with professionals in your county

    We'll notify you when Care Connections is available

    No spam. Just a heads up when it's ready for your area.

    Several types of professionals can help — and the right one depends on what your family needs most right now. An elder law attorney helps with Medicaid planning, asset protection, power of attorney, and legal documents — essential if Medicaid is a consideration. A geriatric care manager coordinates care, evaluates facilities, and helps families navigate difficult decisions — especially useful when family members live far apart. A SHIP counselor provides free, unbiased Medicare and insurance counseling — no sales, just answers. A financial planner with elder care expertise helps families understand how to pay for care and protect assets. A life planner (or life care planner) takes a holistic approach — looking beyond finances and medical needs to help families create a long-term roadmap that considers lifestyle goals, housing preferences, social well-being, and future care transitions. Life planning ensures your loved one's values and wishes stay at the center of every decision. Care Connections will match your family with vetted professionals in your area when it launches.

    Home care — also called personal care or custodial care — provides help with daily activities like bathing, dressing, grooming, meals, and companionship. Home care is generally not covered by Medicare but may be covered by Medicaid waiver programs. Home health — also called skilled home health — provides medical services at home including skilled nursing, physical therapy, and occupational therapy. Home health is covered by Medicare when ordered by a doctor after a qualifying event and when the patient is homebound. Most families need both at different stages — home health for short-term medical recovery and home care for ongoing daily support.

    A regular estate attorney focuses on what happens to your assets after you die — wills, trusts, beneficiary designations, and probate. An elder law attorney focuses on what happens to your assets while you are alive but need care — Medicaid planning, asset protection, spend-down planning, guardianship, and long-term care funding. If Medicaid eligibility is a consideration, an elder law attorney is essential. Most families navigating long-term care need an elder law attorney — even if they already have a will and trust in place.

    Finding the right assisted living community is more than comparing prices — it's about matching your loved one's care needs, personality, and preferences with the right environment. A senior living placement specialist (also called an advisor or consultant) helps families identify communities that fit — based on care level, location, budget, and availability. Many placement services are free to families because the communities pay the referral fee. A geriatric care manager can evaluate your loved one's needs, tour communities with you, and coordinate the move-in process — especially valuable when families are managing the transition from a hospital or rehab stay. A good placement professional doesn't just find a bed — they help ensure the transition is smooth, the care plan is right, and your family feels confident on move-in day. Care Connections will match your family with trusted placement professionals in your area when it launches.
    Your free long-term care snapshot

    You've seen what Illinois has to offer. Now see how it all fits your family's specific situation.

    Every section above gives you one piece of your Illinois picture — what care costs near you, whether Medicaid might help, what senior services and nonprofits are available, and what other programs your family might qualify for.

    But each piece only tells part of the story.

    The free personalized care snapshot puts all the pieces together — your health situation, your financial picture, your timeline, and the Illinois-specific options available to your family. It takes about 8 questions and 1 minute.

    Most families who complete the snapshot tell us it's the first time they've felt like they actually understood their situation. That's what it's designed to do.

    Family members supporting each other through care planning

    Who needs help?

    Tell us who you're planning care for.

    The next questions will be about whoever you choose above — answer for them, not yourself (unless this is for you).

    Step 1 of 8
    ✓ Takes about 1 minute✓ Free — no credit card ever

    Your care snapshot is a personalized summary of your family's long-term care situation — built from your answers to 8 questions about health, finances, and timeline. It covers your care level, how long care may be needed, your financial runway, your Medicaid planning timeline, and your health trajectory. It's free, takes about 1 minute, and gives your family a clear picture of where things stand right now.

    Every snapshot is built from your specific answers — your loved one's health and care needs, your family's financial picture, your timeline, and Illinois's specific Medicaid rules and programs. Two Illinois families with different situations will see completely different snapshots. The more accurately you answer, the more useful your snapshot will be.

    A free account — no credit card, ever — saves your snapshot and generates your complete personalized care plan. Your plan includes step-by-step action items specific to your situation, a document checklist tailored to Illinois, all your tool results connected in one place, a shareable summary for family meetings or advisor appointments, and predictions for when care may be needed and how long it may last. Creating an account takes about 60 seconds.

    Everything your Illinois family needs — in one place.

    Free tools, Illinois-specific resources, a personalized care snapshot, and connections to the right people. All organized for Illinois families. All completely free.

    Built around your situation and Illinois's specific programs and rules.

    Start planning before you're forced to decide

    Always free • No sales pressure • Built for families

    Long-term care resources for neighboring states

    Last updated: March 2026